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Innovative Health Care Magazine

SPECIAL SECTION Neurotrauma A Personal Neurotrauma Tale AUSTIN JONES 72 The first thing you notice about Austin Jones is his piercing blue eyes. They are keen, intelligent eyes when he’s hunting they are ever watchful for some small movement of brush. His ears are attentive to the tiniest snap of a twig, the grunt of a buck, or the call of a turkey. The great outdoors is Austin’s favorite place to be. Austin is an avid outdoorsman. He has traveled to the Upper Peninsula to hunt black bear, to Montana to hunt antelope, and to Ohio, Indiana and West Virginia to hunt wild turkey. Innovative Health - Summer 2016 Austin, age 19, has a type of muscular dystrophy called Charcot-Marie-Tooth disease or CMT for short. He was diagnosed at the age of nine months with MD and then at age three with CMT. He has been ventilator-dependent and wheelchair-bound since he was six years old following a complete respiratory an assistant said that they could feel a faint pulse. Austin ever so slightly opened those beautiful blue eyes. He spent the next two weeks at Children’s Hospital. However weaning attempts from the ventilator were unsuccessful. Austin had a tracheostomy tube placed and was sent home on a ventilator. Austin graduated in 2014 from Mayville High School where he was elected “Homecoming King” by his many friends. When he was young he loved to watch his big brother Jason play baseball and football. Austin even got to score a touchdown at a football game when he was given the ball and pushed over the line of scrimmage by Jason. He is also a big Detroit Tigers and Michigan Wolverines fan. Austin’s family is the most important thing in his life. When you meet them you can feel the love they have for one another. They are caregivers, hunting buddies, mentors and best KEEPIN’ UP WITH THE JONESES and cardiac arrest which occurred on his way for some testing at Children’s Hospital of Michigan. His mom, Stephanie, recounts that day: Austin had not been feeling well and was going to have a pulmonary function test done, His Dad, Jason, was carrying him and as they were getting off the elevator Stephanie noticed that Austin was blue and not breathing. Stephanie ran to the reception area yelling for help. Emergency personnel sprang into action. After a prolonged resuscitation attempt the doctor came to speak with Austin’s parents. She told them that Austin was not responding and she wanted to know what their wishes were. Stephanie tearfully recalls telling the doctor, “Don’t bring him back only to make me let him go again”. The doctor told Stephanie that there was something else she wanted to try before giving up. Stephanie states that the doctor applied pressure to Austin’s jaw and was speaking to him when


Innovative Health Care Magazine
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